“HPS” …. Hermansky-Pudlak Syndrome. Check it out!
In “¿Por qué hay tantos albinos en Puerto Rico?” Alejandro Millán Valencia (BBC Mundo) asks why there is a high prevalence of albinism on the island. He also speaks about the particularities of albinism, as well as the stereotypes and stigma attached to albinos in Puerto Rico. The article includes photos by Colombian photographer Adriana Monsalve. Here are a few excerpts:
In the north of Puerto Rico, one out of every 2,000 people is living with a time bomb in the chest. Over 30 years ago, they did not know and just collapsed on the floor and died suffocated on the burning roads leading to Aguadilla or Moca. Now they know the cause: the area has the higher prevalence of albinism in the world. And of a type that makes the vast majority of albinos suffer, at some point in their lives, from pulmonary fibrosis: the Hermansky-Pudlak syndrome…
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