Rose and her son Joe …. update #2!


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~~January 23, 2014~~

ROSE: JOE UPDATE – They were talking about discharge and continuing chemo outpatient … but Joe’s left leg is swollen to twice the size of his right leg. Tests have shown blood clots forming. So now he will be seeing a specialist and taking medicine to stop them from getting serious. Every day it’s a new complication … and they’re really not sure what’s causing all of these issues … His heart rate is too high, his oxygen levels too low …
And he’s still trying not to worry ME …. feeling overwhelmed with Joseph Catino.

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No discharge. Stay there especially with blood clots , just tell them you’re uncomfortable going home and that no one will be there to assist him during the day. If they insist then have them assign a home health nurse.

ROSE: They can’t send him home now, can they? None of it makes sense ….

Friend: No, talk to the doctor tell him how you feel. They are the ones who can make the calls and have him stay. Tell Joe to scream about pain if he has too, I know Joe is strong and they probably see him as stable and alert. 

Friend: I don’t think they can send him home because he has too much going on outside the blood clots; his heart rate is too high and oxygen too low. I doubt they will discharge him.

Friend: What does Joe think he should do? Would he be more comfortable at home doing the out patient chemo? I’m sorry you are having to watch Joe go through this and feel like there is nothing you can do to control what’s going on. If he did go home you could always go back if he is in to much pain … but he may want to be we’re he is comfortable I know you get no rest in a hospital …. try to be strong. Put on your game face Rosie ….. Joe knows how hard all this is on you he is very unselfish prayers that you will find peace with the decision to stay in the hospital or go home.

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ROSE: His night RN seems to think it’d be highly unlikely they discharge him now. He’s on complete bed rest. They don’t want him getting up for anything. And now he’s getting blood thinner injections twice daily in his belly.

Friend: That’s expected for the blood clots. I don’t think he’s going to b discharged soon.

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ROSE: have I mentioned how much I fucking HATE when one of them looks at me all sad and says, “wow, and he’s only 26”? I know how young he is, damn it, I really don’t need to be reminded. Sorry … random rant … ugh!

They’re so sweet … really … all except that demon oncologist nurse …. She’s the one who’s been insisting on his discharge this whole week! It takes all my inner strength not to throat punch her …

I swear I wanna choke a bitch out … SMH … ok. I feel better now …. no lie, just being able to get it out of my head helps …. no worries, y’all. I don’t plan on snapping any time soon. Won’t give her that satisfaction …

Friend: Definitely here for you Rose and Joe. Let me know if I can do anything, like Acupuncture to relieve the pain. Prayers and hugs to you all. So frustrating but it will get better… we are all here praying and sending our best! 
 
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Friend: Rose….. You got this… He was given to you and you have today …. Do today, tomorrow is another day.. And like everything in life there is no guaranties… I will not sugar coat it for you bc when I was there I hated that … And this fucking sucks … I do care about you and I just wish and pray that this bullshit goes away …. Fuck!

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ROSE: I had posted an update earlier today on Joe and now I can’t find it anywhere. I made a comment about how not having $ and insurance is getting us booted out of the hospital. Did FB remove my status??? Why would that happen … anyone know?
Thank you everybody…. We have our own virtual support group!

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~~WHY HAS JOE DEVELOPED BLOOD CLOTS~~

Deep vein thrombosis (DVT) is a blood clot that develops in the deep veins of the body. It is also sometimes called venous thromboembolism (VTE). Clots are most likely to form in the thigh, lower leg or in the area between the hipbones (the pelvis). A blood clot can block the normal flow of blood through the veins. The veins normally carry blood from around the body back to the heart. A blockage like this can cause a number of symptoms.

A blood clot can be very serious if it starts to move through your body because it can end up causing a blockage in your heart or lungs, although this is not common. Most clots can be successfully treatedso it is important that you report any symptoms to your doctor or nurse immediately.

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~~Symptoms of DVT~~

Pain, redness and swelling around the area where the clot is

The area around the clot may feel warm to touch

If the clot has moved to your lungs (a pulmonary embolism or PE), you will start to feel breathless and have pain in your chest or upper back. You may cough up blood.

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Who is at risk

If you have cancer you may be at higher risk of developing a blood clot because of

The cancer and its treatment

People with cancer often have a higher number of platelets and clotting factors in their blood. This may be because cancer cells produce and release chemicals that stimulate the body to make more platelets. Platelets are blood cells that play a very important role in helping your blood to clot. They clump together to form a plug to stop bleeding. They also give out other chemicals to help the blood clot and repair the leaking blood vessel.

Clotting factors are proteins made naturally by the body. They combine with platelets to help form blood clots and prevent bleeding. If you have more platelets and higher amounts of clotting factors than normal in your body, your blood is more likely to clot.

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When chemotherapy kills cancer cells, the cells can release substances that cause an increase in blood clotting (coagulation). Specific types of chemotherapy drugs are more likely to cause a blood clot than others. Your doctor should explain to you if the drugs you are having increase your risk of getting a blood clot.

Another cancer treatment known to increase the risk of a blood clot is the hormone drug tamoxifen. A trial of tamoxifen to prevent breast cancer in women at high risk showed that it increases the risk of blood clot (thromboembolism). Doctors are very clear that the benefits of tamoxifen far outweigh the risks for women with breast cancer and you should keep taking it if you are already on it. But you should know the symptoms of a blood clot just in case.

Damage to the blood vessel walls

Surgery and chemotherapy can both damage the walls of blood vessels. This will increase your risk of developing a blood clot.

Having less chemicals that thin the blood

Anticoagulants are proteins in the blood that normally help to thin it. If you have cancer you may have lower levels of these proteins. This is more likely if the cancer is affecting your liver.

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The type of cancer you have

Some types of lung, stomach and bowel cancers produce a substance called mucin. This mucous substance increases your risk of developing a blood clot. If you have cancer of the pancreasbowel,lungstomachovary, or womb, you are at a slightly higher risk of developing a blood clot.

Being less active

Sometimes your cancer or treatment can make you feel very ill and you feel too tired and weak to move around as much as usual. Staying still increases the risk of clotting because the normal movement of the leg muscles helps to pump the blood back up to the heart.

After surgery you may not be able to move around much at first. If you are having a big operation your nurse will give you a pair of elastic stockings to wear afterwards. The stockings help to prevent blood clots. You may need to wear these for a few days after your operation.

Long journeys, such as long haul flights, can increase the risk of clots. If you are worried about risk of deep vein thrombosis (DVT) when travelling, there is some helpful advice on the Patient.co.uk website.

Source: http://www.cancerresearchuk.org/cancer-help/about-cancer/cancer-questions/cancer-and-the-risk-of-blood-clots

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Cancer can increase your risk of developing a blood clot (thrombosis), and having chemotherapy may increase this risk further. A blood clot may cause symptoms such as pain, redness and swelling in a leg, or breathlessness and chest pain.

Blood clots can be very serious so it’s important to tell your doctor straight away if you have any of these symptoms. However, most clots can usually be successfully treated with drugs to thin the blood. Your doctor or nurse can give you more information about blood clots.

Source: http://www.macmillan.org.uk/Cancerinformation/Cancertreatment/Treatmenttypes/Chemotherapy/Sideeffects

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IT ISN’T EASY, MY FRIEND! IT’S A HARSH REALITY.

YOU ARE STRONG, JOE IS STRONG. 

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Herbie Hancock – Don’t give up (feat. P!nk and John Legend)

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We ALL are ONE!! 

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We ALL are one your side!! We ALL have your BACK!! 

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